Hemophilia Treatment in Pakistan: Fatimid Foundation's Lifesaving Mission

 Hemophilia is a rare but severe genetic bleeding disease that occurs in thousands of people in Pakistan. For people with Hemophilia, a minor injury turns into an emergency. But with early diagnosis, right treatment, and empathetic care, such people can lead normal, active lives.

At the core of this mission is the Fatimid Foundation, a non-profit health organization that has been providing hope and healing to Hemophilia patients of Pakistan since 1978.

What Is Hemophilia?

Hemophilia is a genetic disorder in which the blood doesn't clot normally due to the deficiency, or insufficiency, of one or more specific clotting factors—most commonly Factor VIII (Hemophilia A) or Factor IX (Hemophilia B). If not treated, individuals with Hemophilia are at risk of spontaneous bleeding, prolonged and excessive bleeding following injury, and bleeding into joints and muscles and within the body, leading to long-term pain, disability, or life-threatening illness.

This ongoing disorder requires ongoing replacement therapy, where clotting factor concentrates are administered on a regular basis, especially following injury or in the run-up to surgery.

The Challenge of Hemophilia Treatment in Pakistan

Hemophilia is still underdiagnosed and undertreated in Pakistan. Largely due to ignorance, lack of diagnostic centers, and availability of costly therapeutic modes, patients—particularly children—are silently suffering.

In rural communities, patients and their families may have minimal awareness of the condition, and social stigma may deter patients from accessing care. Further, the cost of factor concentrates is so high that proper care remains beyond the reach of most poor families.

Fatimid Foundation: Offering Hemophilia Care with Dignity

Fatimid Foundation is one of the very few institutions that offer free of charge Hemophilia treatment in Pakistan. Fatimid has dedicated Hemophilia treatment centers in Karachi, Lahore, and other cities and is supporting hundreds of patients with:

1. Free Clotting Factor Therapy

Factor concentrates are costly and limited in Pakistan. Fatimid offers these life-sustaining injections absolutely free, allowing recipients to control bleeding episodes, have surgeries, and avoid subsequent joint damage.

2. Diagnostic Services

Early diagnosis is paramount. Fatimid provides screening and diagnostic facilities, allowing early detection and planning for treatment, particularly in children born into families with a history of bleeding disorders.

3. Emergency Support

Hemophilia crises have to be treated quickly. Fatimid provides trained physicians and factor treatment to patients in crisis even after working hours.

4. Physical Therapy and Rehabilitation

Chronic bleeding in joints may cause mobility problems. Fatimid advocates rehabilitative interventions such as physiotherapy and joint management to restore patients' independence and mobility.

5. Education and Awareness

Fatimid educates through workshops, patient education classes, and publ
ic awareness campaigns to remove misconceptions, eliminate stigma, and motivate families to access early intervention.

6. Support Networks

Living with Hemophilia is not simple. Fatimid fosters community by linking patients and caregivers, providing emotional support, advice, and advocacy.

A Call to Action: How You Can Get Involved

Hemophilia patients rely on the kindness of donors, volunteers, and supporters. Here's how you can help make a difference:

• Donate: Your financial contribution enables Fatimid to offer expensive factor therapy to those who cannot afford it.

• Volunteer: Become a part of Fatimid's Hemophilia treatment in Pakistan by donating time and energy to assist in organizing events, clinics, or awareness campaigns.

• Share the Message: Break the silence surrounding bleeding disorders by enlightening others about early diagnosis.

• Organize a Blood Drive: Many Hemophilia patients also require safe blood during crises. Participate in organizing or donating blood at schools, workplaces, or local communities.

Every Drop Counts, Every Life Matters

Hemophilia might be uncommon, but the bravery of the people who live with it is not. At Fatimid Foundation, we do not think any patient should be denied a chance to live without the fear, pain, or loneliness of Hemophilia.

Let us work together so that no child in Pakistan suffers from a preventable bleed, where care is available, and each person with Hemophilia has the power to live with dignity.

Support the Fatimid Foundation. Support Hemophilia treatment in Pakistan. Donate, volunteer, or learn more at https://fatimid.org/